A Day In The Life

A day in the life of someone with epilepsy comes with unique obstacles. Even something as simple as staying up too late or waking up too early can trigger seizures and disrupt the plans for the entire day. Another every-day trigger for seizures is increased stress. Stress is a common trigger because it affects sleep quality, and it can alter the hormone levels in the brain, overexciting the cells. Diet management is important for someone with epilepsy. The ketogenic diet (high fat and very low carbohydrates) is well-known for reducing seizures. Unfortunately, because the diet is highly restrictive and requires careful nutritional balance, typically it is only successful in children that are being bottle fed or tube fed, or patients under the supervision of their doctor or a nutritionist. However, an alternative to the keto diet is the Modified Atkins Diet (MAD). This diet is much less restrictive than the ketogenic diet and is more practical for adults to follow and maintain. Going to school and work can also be a challenge for those with epilepsy. But with a doctor’s note, accommodations can be given for those who need extra time for assignments, quizzes, and tests. At work it is important to inform a coworker or supervisor about seizure first aid, and tell them where any rescue medications are and how to use them. Because keeping a regular sleep schedule is critical, accommodations may also be granted in the workplace. Accommodations include: flexible scheduling, breaks when needed, and modified tasks to decrease the chance of seizure. Driving is one of the most common day-to-day  inconveniences of epilepsy. Many of those with epilepsy do not have the convenience of driving. In order to drive, a person must go months without having a seizure. In the United States, the time period requirements differ by state. Getting medical documentation from a doctor may also be necessary in some cases.The topic of exercise can be controversial. Many times, the exercise itself is highly individualized and the results are unique to each person. Typically, light exercise such as walking, cycling, and strength training are encouraged to reduce stress and improve sleep. Those with epilepsy should prioritize their planning and organizational skills if they plan to travel. Some helpful travel tips include: always carrying extra medication and rescue medications with you, (its important to carry them in their original container incase someone needs to give them to you), adjust medication scheduling if crossing time zones, and most importantly wear medical identification — a necklace, bracelet, or any other form of identification. By prioritizing self-care, making proactive strategies, and staying informed, individuals with epilepsy can manage their condition and maintain independence.