Tips N Tricks

Epilepsy affects millions of people worldwide, but with the right strategies, it’s possible to lead a fulfilling and balanced life. Over the past 6 years, I’ve kept a mental note of any tips and tricks that have helped along the way. I’ve put together a few of them for you to enjoy as well. I hope they help! Set an alarm for med time, and make sure you have it set for each day. You should also set an alarm/reminders on your phone for when it’s time to refill meds. You don’t want to run out! Another great tip I learned was to utilize my resources, such as apps available to track seizures. The app I found to be most beneficial is “Epsy.” On here, you can document when you had a seizure, any triggers, what kind it was, and so much more. It even gives you the opportunity to write all about what happened (this feature is great for appointments!). Taking a good probiotic (I use the brand Now), as well as supplements, is important. Opinions differ about which supplements are most beneficial, but I take DHA (great for brain health), magnesium chloride, vitamin D3, and 5-MTHF. Safety should be your number one priority, so I highly recommend getting a seat for the shower. You can never be too careful. If you suffer from hormonal epilepsy related to your menses (catamenial), I suggest the DepoProvera shot. This shot is systemic, so it is much more effective than other forms of birth control that are being used for seizure control. The Mozart effect—music has been known to affect mood and even health. The Mozart Sonata for Two Pianos in D 448 has a positive effect on seizure activity. If you’re ever stressed, turn that on and see what happens! If you find yourself not getting enough sleep, wear an eye mask or get blackout curtains. Remember, lack of sleep is one of the most common seizure triggers! Do you ever freeze up at the doctor’s office when they start asking you questions, and the next thing you know, your appointment is already over? Get a small notebook, and the day before your appointment, write down all your stats, any questions you have, and all of the answers to the questions the doctor typically asks, such as “When was your last seizure?” “How frequently do you have seizures?” etc. By doing this, you get more bang for your buck by having everything addressed with the doctor. Bringing a bandana when you get an EEG is smart; that way, you don’t have to walk around with the glue showing in your hair, making a bird’s nest on your head. Use oils and a fine-tooth comb to get that glue out, and patience. If you’re starting to feel alone with your diagnosis and you need a boost, join a support group or a group on Facebook. There’s a ton! Starting a hobby is great because it puts your brain to work. Don’t let epilepsy win! Keep thinking! Lastly, this tip may sound a little ridiculous, but trust me, ladies, you’ll appreciate it when the time comes. I’ve had many long hospital stays, and if you’ve been hospitalized, you know you aren’t allowed any sharp objects. They consider tweezers a sharp object, so you’re walking out of the hospital looking like Groucho Marx. I recommend getting your eyebrows done before a long stay in the hospital. You won’t regret it. I hope you enjoyed my tips and tricks and can use some of them. Until next time!